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About the second week in March
93, my eyes were suddenly (overnight) hit by what looked like
conjunctivitis, all red but not sore. Being no different from
anyone else, I let things go for a few days but eventually I went
to my doctor who treated me for conjunctivitis. This treatment did
not work so it was back to the doctor. Still diagnosed as
conjunctivitis, cortisone was prescribed. This did not improve the
situation. My eyes by this time were getting progressively worse
in that I had great difficulty when I went out into the sun
(squinting) and when driving, my short distant sight, about 200
metres, was so poor focusing, I could not hold my eyes on the same
spot ahead ('Swimming' sensation occurred). Back to my doctor who
this time referred me to an eye specialist, Dr Bill Austen on the
Gold Coast. By this time it is Thursday April 8th.
Dr Austen diagnosed severe
conjunctivitis, with ointment and eye drops and 'come back next
Tuesday'. The treatment had no effect. Dr Austen then referred me
to Professor (Dr) Laurence Hirst, Professor of Ophthalmology at
the Princess Alexandra Hospital in Brisbane.
Dr Hirst examined my eyes
(April 15th) and stated that as there was still quite an amount of
medication in my eyes, he could not examine them to his
satisfaction. An appointment was made for next week. However, he
was of the opinion that my eye
problem was actually a systemic disease, which would eventually
show itself. With this in mind, he arranged for me to see Dr
Graham Hall for a check up. Dr Hirst was quite right in this
(systemic) diagnosis but fortunately the disease stayed in my eyes
only! The check up and subsequent blood test revealed naught.
April 22nd - with Dr Hirst and
my eyes were deteriorating fast. Dr Hirst was showing his concern
Even though he was convinced that the problem was systemic, he
would do a biopsy of my eyes next week. April 29th - Biopsy done -
samples sent to America - negative result.
May 6th - Dr Hirst stated that
I was going blind. This was somewhat of a shock although I knew
that something was drastically wrong. However, Dr Hirst and Dr
Hall had arrived at a diagnosis - WG. In my dazed state, they
tried to explain WG to me - it went right over my head!
Cyclophosphamide 3 x 50mg and Prednisone 2 x 25mg was prescribed
and to start that day.
May 7th - After only one dose
of prednisone (the previous night), BINGO! I could see.
From this stage on, I visited
both doctors in Brisbane through to July 93. Blood tests each week
at Broadbeach plus the odd Xray and the medication adjusted
accordingly. My general health and my eyes were improving to the
point where I could drive my car from the Gold Coast to Brisbane
for my appointments.
NOTE: The only symptoms of WG
were my eyes and very heavy night sweats (boy, was everything wet
in the morning) and tiredness and to this stage, early July 93, I
did not have ANY of the side effects usually associated with WG
medication except hair loss. The night sweats lasted from April
through to mid September 93 (stopped abruptly). Strangely, at no
period was there any pain - unlike most WGs.
Early July: I developed a dry
hacking cough (Xray clear) followed by the appearance of blistery
pimples on my chest. Swabs taken showed that Herpes Simplex had
arrived to complicate the situation.
July 23rd - Admitted to the
Princess Alexandra Hospital. My stay was 18 days. After 10 days of
very high body temperatures, a shadow appeared on my lung. A
broncoscopy was performed but all was clear. Because of my high
temperature, the cyclophosphamide was stopped after a week in
hospital. This was done to build up the immune system. I have not
resumed the cycle, medication. My night sweats in hospital
certainly kept the night shift nurses on their toes.
August 9th - Discharged from
hospital - medication for home - Acyclovir 200mg 3 times daily and
Prednisone 5mg each evening( NO CYCLO ).
August 19th - Dr Hirst very
satisfied with my progress and unless my eyes flare up again, he
does not wish to see me again (this is so to this date March 97).
August 31st - Dr Hall - pleased
with progress - continue to see him monthly with blood tests and
Xray prior to each visit.
November 14th - all medication
ceased. March 17th 1994 - final visit to Dr Hall.
My time with the WG medication
was very short and it would seem that my recovery is as complete
as WG will allow. I have not had any indication of any of the
symptoms of WG since 1993. I feel good!
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