Wegener's Granulomatosis Support Group Of Australia Inc.

 

Anne-Marie Mriarty - Born 2/1/1953 Diagnosed 1992

First symptoms: March 1991

Sinus problems, continuous headaches, nosebleeds, dry crusty nose, loss of voice, difficulty breathing, always tired, aching joints.

Some tests included: CT scan of sinuses - nose and trachea biopsy at Rockhampton, nose biopsy in Brisbane.

Medication before diagnosis: Teldane (anti-hystamine) - Voltaron (for joints) and antibiotics/beconaise (nasal spray).


First diagnosed in February 1992 by Dr Don Jobbins at the Wesley Hospital Brisbane.

Medication: Cyclophosphamide and Prednisone

Side effects included fat tummy, weight gain, mood swings, moon face, thin skin, thrush and early menopause.

Both drugs were taken from February 92 to July 94

A note written in 1994 by Anne-Marie:

"Because WG affected my trachea, it is very narrow and will one day need to be lasered because scar tissue obstructs my breathing. My nose still remains sore and needs constant cleaning. In June 1993, a regular head scan to check granulomis growing in the sinuses found that I had an aneurysm in the brain. The aneurysm was clamped and drained during a seven hour operation. WG saved my life ."